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MPs seek Shs 1.2 billion for nodding disease treatment

Members of parliament are seeking an annual allocation of at least Shs 1.2 billion for the treatment of sufferers of the nodding disease syndrome in northern Uganda. 

The request is in support of a proposal by Dr David Lagoro Kitara, a senior medical doctor attached to Gulu University. Dr Lagoro suggested a monthly allocation of Shs 50 million to two centres set up to manage nodding disease patients in Odek and Tumangur.

State Minister for Health Sarah Opendi addressing the House about government's input efforts in combating the nodding disease syndrome 

Lagoro who has been working on the disease since 2006 was invited by the deputy speaker Jacob Oulanyah to make a presentation before members of parliament. In his statement, he reaffirmed that the disease is treatable but centres are constrained by lack of resources. 

Kilak South MP Gilbert Olanya calls for a needs assessment for affected households and rehabilitation centres in the districts most devastated by the disease. He says information obtained by the Acholi MPs indicates that there are over 3,000 children living with nodding disease. Another 1,000 lives have been lost according to the MP. 

However, government records indicate that 2,143 cases have been recorded, and 37 lives have been lost since the outbreak of the disease. 

Ngora County MP David Abala said that Ugandan children cannot be subjected to untold suffering while money is spent elsewhere. 

According to the ministry of Health, Shs 1.8 billion has been disbursed to date towards nodding disease in the northern Uganda. Ministry of Health says it stopped funding nodding syndrome activities after districts failed to account for quarterly disbursement to them.

Adjumani Woman MP Jessica Ababiku called for an audit and investigation into the alleged mismanagement of over Shs 200 million meant for nodding disease syndrome. She says it's unfortunate that money is released to help children but some people don't have the heart to save the children.

Nodding disease syndrome, according to WHO, is a neurological condition with unknown cause or origin.  It was first documented in Tanzania in the 1960s, then later in the Republic of South Sudan in the 1990s and in northern Uganda in 2007.

WHO says nodding syndrome typically affects children between the ages of 5 and 15 years old, causing progressive cognitive dysfunction, neurological deterioration, stunted growth and a characteristic nodding of the head.

Despite numerous and extensive investigations in all three countries, very little is known about the cause of the disease. 


0 #1 Ogwang Along Longino 2018-03-15 13:29
As Christians, let us treat these suffering children as fellow human beings created in God's image.
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0 #2 rubangakene 2018-03-15 19:39
We haven't been told the full truth about this strange disease. Sample were apparently taken to the USA eminent laboratories for analysis; why were the results not disseminated to the public?

What are they hiding? Could we try another country like Cuba or even Israel to study the syndrome or are these poor people just mere "biologicals"?

What happened to the "laboratory-grown mosquitoes" that were brought in to 'eat' the local mosquitoes. Africa is always used as a platform for half-cooked experiments.
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0 #3 Ocaya pOcure 2018-03-16 00:24
Acoli kinfolks, and sympathisers,
My open appeal to the whole of you is, please do not open your mouth and pour your good thoughts in the circus of Dr. ACENG since, there is a saying which states that; ‘blood is thicker than Water.’

The massive abominable deaths of our beloved children through this incurable disease are dryly open in Acoli landscapes.

Clearly, the whole folks those have eyes to see can easily see. But unfortunately Dr. ACENG had continuously and purposely become blind and deaf.
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0 #4 Ocaya pOcure 2018-03-16 00:26
Dr. ACENG had failed to hear even the wailings and cries of Acoli mothers, fathers and relatives in grievances about the deaths of our beloved children.

These deaths had continued unabated as the Ministry of Health, which Dr. ACENG leads has no priority to make some financial budget for slowing this epidemics.

Truly, let Dr. ACENG guards and protect her position at the Ministry of Health without thinking about deaths of our beloved children those continue to die on daily basis years in and years out!
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0 #5 Ocaya pOcure 2018-03-16 00:27
Lastly, I am sorry to request you quite clearly not to be the proverbial grasshoppers confined in the limited space attacking each other.

Because, the ongoing deaths of our children can never be concealed since it will not invisibles as Dr. ACENG is insinuating.

The politics of concealment of genocide shall continue to witch-haunt Dr. ACENG in the future!
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